Short story:
You know about blood donation, right? What’s rarer is bone marrow transplant, which is used to treat patients suffering from Leukemia. We are conducting a bone marrow donor education+registration drive in Mumbai. The venue for the first drive will be the Pinstorm office, Santa Cruz (West) and it will be held on Friday, 9th December, from 5pm to 7pm.
Long story:
We are all too familiar with blood donation drives. We see requests for blood donors regularly; they seem to appear every other day, if you use a portal like Twitter. And often, we donate blood at these requests, or at blood donation drives that are fairly common in the city, which happen every few months in our colleges, offices, even railway stations.
Once in a while though- we get that email. The one that solicits funds for an expensive operation. They ask you to raise funds from your friends and family too- you know it is going to be a long, hard ride for whoever is involved.
One of the more common diseases for which funds are often sought is Leukemia. A terrible disease this is- it can cause your immune system to stop working, it can cause your clot-healing system to quit, causing you to bleed to death, or it can make you go completely anemic.
The last resort for the treatment of Leukemia is a bone marrow transplant. This process also involves one of the hardest aspects of dealing with the problem- the search for a bone marrow donor.
Unlike blood-donation, that we are all accustomed to, finding a match for bone marrow is not as straightforward. This does not simply involve a small range of blood types. This involves a genetic type match. This is, however, a technical issue. The second, and more significant problem, is the fact that we do not have enough people who have signed up to be prospective donors.
This makes it extremely hard to find a match. About 25% of patients find a match within the family. Which means the remaining 75% don’t. What makes this worse is the fact that there are only a handful of donors who have registered to become prospective bone marrow donors.
Why is this?
The primary reason is the impression that people have around the process that they have to undergo if they are found to be a match for a patient in the future. They believe the process of harvesting bone marrow to be a painful process, with a needle that pulls bone marrow out directly from the bone.
While this is one possible way to harvest the stem cells that are required for the patient, this method is falling out of favour. In fact, none of the donors who sign up for this drive will ever be asked to undergo this process.
What is currently the norm is a new process that is entirely painless. Well- about as painless as a normal blood donation. This is called a “Peripheral Blood Stem Cell” transplant.
Instead of pulling stem cells out directly from the marrow, you are given a series of growth factor injections over 5 days that cause stem cells from your marrow to be released into your blood stream. On the fifth day, you will undergo a process that is no different from platelet donations- one tube will withdraw blood from your body, have it processed through a machine to extract the stem cells you do not need and another tube will put the blood right back in.
This is it. You will never be called for a classical marrow extraction.
However, should a match be found, you should be ready to dedicate the time that is required for this process. The injections are straightforward- you go to a hospital and are injected as you would expect once every day for 5 days. The procedure on the fifth day is more involved and requires you to dedicate about four hours to the process. There is some flexibility on scheduling this, but as you can imagine, this will be at somewhat short notice.
The process of signing up is very straightforward. Drop by at our donor registration drive. We’ll show you a video about how this process works, talk you through everything involved, take any questions you might have and do a cheek-swab procedure which will involve rubbing the corners of your cheeks with sterile swabs (these are like earbuds, just sterile). We’ll pack the swabs up and send it over to be genetically profiled and saved over to a donor registration database. You will only ever be called in for the actual donation if a match is ever found. This may happen at any point in the future.
The tests will be carried out, free of charge to you, by DATRI, one of the three blood stem cell donor registries in India. You will also be given a complementary copy of the test result.
If you are matched and called in, you can rest assured that YOU are saving someone’s life in a way that, quite possibly, no one else can. In the event that you are called in, the procedure will be carried out at a leading hospital in the city. In Mumbai, hospitals like Jaslok and Prince Aly Khan do this currently.
The corollary is- we would like you to NOT come in and register to be a prospective donor if you believe you won’t come in if a match is ever found. Also, if you sign up as a donor and you would like to back out later, please inform the registry so that your name may be removed.
If you have any questions, please watch the video here (http://register.datriworld.org/Video/videoQT.zip) or email us at marrow@mumbaikar.me. You can also send us tweets at @MumbaikarME.
The address of the venue is:
Pinstorm
Swati Building, Ground Floor,
B/h Kotak Bank, Off linking road,
North Avenue, Santacruz West,
Mumbai - 400054.
Office Contact # : 022-2648 8853
Edit: We've just added a Facebook event so we get an idea of how many folks are coming in.